Tags: autism, disability, marginalized groups, of online discussions
6 Comments
Jim Hines recently posted about his son, who has Asperger’s Syndrome, as a response to a comment someone left on his blog. It’s a good post – and you can never go wrong with photos of kids dressing up as Mario, right? Oh, the memories…
Still, I was nervous to venture into the comments. I sometimes struggle to read online discussions on Asperger’s, ablism, and related topics, because I know I’ll be twitching two minutes in. Most people are wonderful, but inevitably, a few things will be brought up.
(These aren’t in reference to Jim’s post specifically; I’ve seen these things a lot over the years, in many different places, and I just wanted to gather my thoughts on why it bothers me so much.)
* Someone is autistic, not stupid/drooling/insane/etc.
Depending on context, this can be pretty insulting towards people who do have certain mental problems. Ablism is always bad, not just when it’s perpetuated against high-functioning people. It’s really not cool to distance oneself from people with the “icky” disabilities.
(Note: If someone is stereotyping Asperger’s and making incorrect assumptions, jumping down their throats is totally cool. But often I see this used as “I have Asperger’s, but I’m not like those people!” Slamming other disabilities = just as ablist as people slamming Asperger’s.)
* But you don’t notice anything!
This is not always the positive thing it’s made out to be; it can be intensely stressful to be pressured into cutting down on stimming and similar ‘noticable’ autistic traits. So what if someone flaps their hands? It’s not inherently negative.
The thing to strive for shouldn’t be acting neurotypical; it should be minimizing difficulties.
* S/he’s very successful!
Again, it depends on context here, but often I’m not entirely sure what’s expected of me when I’m confronted with a story like this. It’s okay to be autistic as long as you can do everything that non-autistic people can? S/he’s a credit to her/his diagnosis? A lot of these ~*inspirational*~ and ~*awe-inspiring*~ stories of these mythical successful autistic folks are kind of creepy.
And here’s the thing: I’m on government benefits. I can’t hold down even a part-time job. I never finished high school. Does that mean someone who does manage to do those things is worth more than I am? That we’re both autistic doesn’t mean our brains work the same way, it doesn’t mean we can handle the same things, it doesn’t mean we had the same opportunities.
(Note: again, I’m OK with this being used in a context to refute stereotypes. If someone says that all people with Asperger’s are jobless losers, it’s totally cool to point out someone with a job who’s very successful at it. It just bothers me when these people are focused on and used as something to strive towards; it’s saying, “Your having Asperger’s is no excuse to be jobless/difficult/whatever,” when, in fact, sometimes it is.)
* Oh, he’s not really autistic – he just self-diagnosed.
A lot of people don’t have the opportunity to get a professional diagnosis, or tried and had incompetent doctors. Are there people who wrongly self-diagnose? Sure. But random strangers on the Internet aren’t the ones who gets to decide that.
Many people who self-diagnose do their research beforehand, the same way psychologists diagnose anything; there isn’t any blood test for this shit. They look at behaviour and thought patterns and that’s it. Given that Random People Online don’t know how much research someone did or didn’t do, they don’t get to claim ‘false’ or ‘true’.
Some realize this, and have taken to interrogating people about their symptoms and how much research they’ve done. Protip: this is none of your business. Stop policing people.
Having a diagnosis can be very validating, but it doesn’t mean that undiagnosed Asperger’s is any less real. And given that people who complain about self-diagnosis often say they’re trying to help the people with “ACTUAL Asperger’s”… please realize the implications of what you’re doing. For every five people you’re right about, there’s one you’re wrong about, and that’s not worth it. An asshat is an asshat. How they identify shouldn’t matter.
In addition, claiming you have Asperger’s isn’t as useful as a lot of people think it is. Even those of us with an official diagnosis often struggle with disbelief and dismissal. People really don’t have as much to gain as is often thought. A lot of the attention gained is negative attention.
* Some Asperger’s idiot –
I will not go into detail here. In short: Fuck you very much.
* Person [X] has some Asperger’s traits –
Autism of any kind does not begin and end at social awkwardness. I’d even say it’s the least noticable of my Asperger traits. What I notice a lot more of is this: Lack of self-discipline. Obsessions. Struggles with certain foods and textures. Inability to handle certain sounds. Stimming. Inability to look people in the eye. Mental exhaustion after social affairs. Difficulty planning ahead. I could go on and on.
Yet, the moment someone on TV is socially awkward and/or particularly interested in a certain topic, they must be autistic.
Honestly, insta-diagnosis by complete strangers bothers me a heck of a lot more than self-diagnosis of any kind.
These are just a few of the things I could think of off-hand. I welcome discussion, but the standard no-asshattery rules apply.





This post TOTALLY ROCKS. Thank you so much for it.
Ah, so glad someone was able to enjoy my ranting.
You know this is an issue close to my heart. I'm fortunate that we haven't dealt with any bad public reactions to Critter, since 95% of the time he's a sweet kid. I do tend to avoid online discussions of autism because the comments can make me upset (cue the xkcd "someone is wrong on the internet!" comic). To see people say, oh, autism is just a trendy diagnosis like ADD/ADHD was in '90s, or simply an excuse for bad parenting… it hurts. It hurts a lot. I can't speak for other kids, but I know mine and I know he had issues from the time he was born. Today he came home from school with a big knot on his forehead because a teacher asked him to step away from a computer, so he rammed himself head first into a concrete wall. The wall won. Right now he's in the other room happily reading a dictionary, and will continue to read it all evening long.I'm hoping that more people will approach autism and Asperger's with understanding, but I know some people will continue to see it as an "excuse." I just hope they don't try and confront me on a bad day.
*hugs you*You are awesome.When i was in college to learn to be a teacher, I learned about Asperger's, autism, etc., in a very clinical, analytical way. I memorized traits to "watch for" to help identify symptoms, I learned "alternative methods" of teaching, and on and on. But I'm so glad that the first student I taught with Asperger's was a student I didn't previously knew, and whose paperwork didn't get to me until three weeks after I knew him. I think I might have done all those "check-list" things I was taught to do in school, but in reality, I was able to help Gray not by the list of things we're taught, but just by talking with him and adjusting as I would for any student. In short, I got to know him before I got to know his "disease," and that made all the difference. He wasn't the "handicapped student," he was Gray, and he was awesome.
PS: You can totally tell I read Jim HIne's post first (all those awesomes)–I didn't mean to repeat that adjective!
Beth C. – Yeah, it can be really painful to see something you deal with on a daily basis so casually dismissed by total strangers. Do they really think they know your kid better than you do? Than his doctors do? Sigh.I hope that bruise has healed by now!
Beth R. – Being informed of these things beforehand can be really beneficial sometimes… and not at all other times. There's always the risk of people going, "People with Asperger's struggle with [X], so therefore you must too!" When the obvious solution is to, y'know, ask the person. Or observe. Or whatever. Like you say, there doesn't have to be any real difference between dealing with autistic kids and others just as long as you communicate.I wish they'd teach that in schools.
And hey, there's nothin' wrong with awesome. One of my favourite words!